Another fun event for Bee was the Talent Show. Apparently there’s a video floating around somewhere of her singing “I’m wide awake” by Katy Perry. Sadly it hasn't surfaced for me to experience it…she received some great compliments that were passed down to me. She also did the “Cup (When I’m Gone)” song by Anna Kendrick while she juggled around some cups. Still to be confirmed but I did manage to snag a great picture of that event!
Finally the real amazing day she had was the one that hosted Camp Wonder’s Prom! Camp Wonder sets this up because, sadly, many of these children do not get to experience a real prom. From what I understand there was a boy that was interested in asking her to the prom but he just didn't know how to approach her…how CUTE is that?!? Apparently, my child at the end decided she wanted to go to prom “stag”! She was more interested in hanging with her girlfriends than a date for prom. We weren't ready to have her go to prom but apparently Camp Wonder had everything in place for the kids to look dapper at their main event. You see, Camp Wonder managed to get all the prom attire donated by the employees of Cetaphil US – dresses, suits, ties, you name it! It made for such a fun event to just pick out a prom dress! So here I am thinking Bee is going to get a modest dress with sleeves and very comfy. BOY was I wrong! My daughter decided to pick a black/white tulle dress with tons of prickly, shiny and beautiful details. Oh and sleeveless! I do admit she worked that dress.
Over all her experience at Camp Wonder was such an empowering one! She did mature about a year or more! She seems more confident and in actuality feels more at ease that she’s in good company when it comes to speaking about EB to her peers. I have seen her form some amazing friendships and created some unforgettable memories! I can only pray for good health and many positive days ahead of 2013 into 2014 so she can make it back to Camp Wonder next year!
I have to give some personal thank yous to a few people out there! Christine Tenconi who contacted me and answered many questions I had regarding camp, including setting up all the travel arrangements and my endless emails. Also, Francesca Tenconi for having the same ease and confidence to have established such an amazing camp! Dedication and hard work has paid off exponentially for so many families thanks to her unselfish ways! Also, Richard (I fail to remember his last name) who gave us a stern talking to at camp (by us I mean Robert and I) to let our little girl become even more independent and to have faith that those that are in the med shed really do know and understand about EB and it’s medical involvement/care. Then there’s wonderful Danielle Malchano from National Rehab who not only is a part of our wonderful supplier that delivers Bianca’s bandages every month but was also one of her nurses at the camp that helped Bianca with bandage changes, showers and so much more! Then there are those counselors like Sarah, Alexis and Carter plus Jassamine who texted me a picture here and there to put my worries at ease. Thank you as well to the Taylor Family Foundation for providing such an amazing venue to host this special camp! I am eternally grateful to so many more that I can’t remember a name but do remember a face! This has been overall an experience we will never forget!
See you in 2014 Camp Wonder!