Today is rare disease day & just for today try & educate one person on EB...which is, in my opinion, one of the rarest diseases around.
Check out EB Research Partnership: www.ebresearchpartnership.org
|Bee @ Downtown Disney ♡|
|Bee @ Dave & Buster|
|My "Incredible" Family @ Hollywood Studios|
|The REALLY MONSTER that EB can be...|
But our Faith in God, our Spirit of Hope &
our Belief in Miracles plus constant woundcare
always help us defeat this monster in battle!